Where Do I Begin After An ADHD Diagnosis?
Your child is newly diagnosed with ADHD. What now?
Start small. Begin by identifying your expectations. Learn about your child’s strengths. This gives you the advantage. You’re ready to help your child and set them up for success.
As parents, we have expectations for our children.
These expectations come from our own experiences, values, and beliefs. Let’s start with basic recommendations found in an article by Dr. Beth Seidel titled “Parent Expectations: 2 Steps to Success”. The first step; allow yourself to mourn.
When our children are given an ADHD diagnosis we can be in shock and we want answers.
- How come?
- What is this?
- Who has this?
- What do I need to do?
- Who can help me?
Mourning is about giving yourself permission to grieve, be sad or weep if needed.
When Is The Time To Act?
Once you have given yourself the opportunity to absorb the news of the diagnosis, find out as much as you can about ADHD.
How does ADHD affect your child?
What are the treatment options for your family?
Talk to family members and answer their questions too.
Clarify your expectations and move to Dr. Seidel’s second step.
Take time to “redefine or reframe” your expectations based on what you learned about ADHD. You don’t need to raise or lower your standards or expectations.
It means you will teach, expect and support your child at their level. Dr. Seidel helps us by giving us three recommendations:
- Clarify your expectations based on the child’s developmental stages, as you would with any child
- Ask yourself where your child’s development is based on the stages of growth. Take into consideration an ADHD child is 33% or 3-5 years behind their peers. How would you respond to a meltdown or tantrum from your 10-year-old compared to your 13-year-old?
2. Define your expectations based on your child’s neurological abilities
- ADHD is a neurobiological disorder. It affects our children’s neurological abilities. Gain an understanding how the neurological abilities and executive functions, such as emotion, self-control, memory, and learning, affect your child.
3. Establish your expectations based on what’s important to you for your child’s success
- What’s most important for your child to be successful? What do you need to let go of? Are you comparing your child to a sibling, relative or another child? Are you listening to what others say about their child and how good they are doing in school and you know this isn’t the case for your child? Is it because your child needs help transitioning from one activity to the next? This means you’ll need to monitor the transition process and support your child. Is your expectation they’ll do their homework with minimal disruption and less support from you?
Areas Where You Can Redefine Your Expectations
- Your emotional response to their behaviors
- Planning a vacation
- Your child social interactions with peers
You have lots to consider as a parent of a newly diagnosed child with ADHD.
Let’s go back to those strengths. Take a look at the character strengths from VIA.
Take time to think of your child and write down all you know they are good at and do. Use the list to help you in the process.
Knowing their strengths is to your advantage. You can provide feedback. Create strategies to work for them. You have the power to inspire your child.
The small seed you have planted will grow slowly and helps them be the best person they are set to be.
Find your answers
By Guest Author Gina Pera
Years ago, when my husband first agreed to be evaluated for ADHD, he did it on one condition: that I be evaluated for it, too. Whether he simply disliked being singled out or truly thought me ADHD’ish remains lost in the mists of time and perhaps distorted perception.
My guess: He simply wasn’t connecting the dots between his actions and my reactions, which from his perspective seemed to come irrationally flying out of nowhere. From my perspective, of course, my reactions were entirely justified. But could I be sure? No. Beside, something had to be up with me if I continued to “ride the rollercoaster” of miscommunications, conflict, agreements gone kerflooie, and so on. So, I happily agreed to join him in a professional workup.
Two lengthy evaluations later, my husband was diagnosed with ADHD and I was not. Instead, the psychiatrist pronounced me “complex” and said, “We usually recommend that our patients with ADHD have partners who are organized and can take care of practical matters.” It took me a minute to comprehend: Wait, you’re prescribing ME for my husband? (What might they prescribe if my husband didn’t already happen to be married to an organized person. Divorce? A professional organizer love-match-making service? I didn’t think to ask.)
For the next few years, we endured some head-spinning confusion as we struggled to understand and smooth out the dynamics between the two of us, between our respective neurons, and various permutations thereof. During that tumultuous time, an outside observer might have been tempted to diagnose us with a smorgasbord of conditions. And, at some points, we certainly would have agreed.
Fast forward several years. My husband still has ADHD, though most of the time it’s now just a difference and not a big deal. I still don’t have ADHD, as my husband will confirm. I’m not perfect (who is?), but I’m much less confused, anxious, depressed, and reactionary than I used to be while the ADHD Roller Coaster ran full tilt and neither of us knew why. We’ve both made big changes.
Our story will resonate for many couples affected by unrecognized ADHD. That is, once the ADHD was diagnosed and addressed in a cooperative way, the rest of their challenges were more easily targeted and resolved. It was truly a “good news” diagnosis. For other couples, though, reaching the ADHD diagnosis creates more questions about the relationship’s dysfunction than it answers. Which brings us to Part II of why the good-news diagnosis of ADHD sometimes means bad news for the relationship.
Previous Blog Recap: Good News/Bad News
To recap the previous blog post (click here to read the entire post):
Newly diagnosed adults with ADHD begin treatment, often including medication, and soon the “fog” of distractibility, impulsivity, and inattention begins dissipating. With newfound clarity, many of these adults start re-examining their choices – job and career, friendships, health habits, and sometimes even their mates.
Frequently for the first time in their lives, adults feel solidly optimistic about their ability to evoke permanent changes; after all, they finally have the right answers and right tools. As they excitedly embrace new competencies and confidence, though, inevitably the “balance of power” in their relationship starts shifting.
Jack provided our case study in the previous blog post. Newly on board with ADHD treatment, he expressed bitter resentment over what he felt was his wife’s abject lack of appreciation for his stellar progress. He concluded she had unacknowledged problems of her own, including a drinking habit that had grown increasingly problematic over the years. Last I heard from him, they were headed to divorce.
Post-ADHD-Diagnosis and Reality
Last month, I offered a few reasons why Jack might not be seeing his wife’s side of things and might even be misperceiving his level of progress. The post-ADHD-diagnosis phenomenon is a big and complex topic, full of surprising twists and turns.
For example, sometimes the partners of adults with ADHD go a bit ballistic when the diagnosis finally is made. This typically occurs when they’ve long struggled to “explain the inexplicable” and “manage the unmanageable” around a partner’s unrecognized ADHD symptoms.
When they finally learn that not only did their partner’s problematic behavior have a name it also had a solution, their reaction might be akin to a psychological pressure-cooker blowing its lid. They think back to all the years of frustrating therapy sessions, of futile accommodations, of being blamed by their partner for being “too controlling” or “fill in the blank.” They might finally understand how they developed a drinking habit to compensate. The resentment might ratchet up by an order of magnitude if they are also suddenly expected to be their ADHD partners’ support system while receiving no acknowledgement of past hurts or any focused therapy to address their own trauma. All of these are common scenarios.
Another equally possible scenario for Jack is that his wife’s dysfunctional behaviors had long flown under the radar screen and had in fact been lifetime problems for her; he simply had been too “disconnected” to notice before marriage or after. With treatment, though, he was noticing and dynamics were shifting.
I received a comment from Katy, who writes about Adult ADHD. She explained how her ADHD diagnosis had a similar bad-news effect on the relationship but a good-news effect in the end:
Katy: Another Real Life Story
Bad news: It was one catalyst for the end of the relationship I was in when I was diagnosed…but that relationship wasn’t a good fit for me or him anyway. He was a nice guy with a little toxic care taking streak that even pre-diagnosis I didn’t need imposed upon me. And frankly, some of my ADHD quirks were a little stressful for him to live with…duh 🙂 He was far too rigid in his routines for me to be able to accommodate.
My diagnosis process made him appreciate me as someone who was working hard to take responsibility for their whole selves…but that didn’t change the fact that my whole self wasn’t a good fit for his whole self. Plus, he was using my eccentricities to hide behind, so he didn’t have to deal with his own…!
I think we’re both better off having split up. I got tired of being “the person with the problem” and he got tired of stepping over the garbage can to get to the front door (hey, what can I say, I need visual cues).
Good news: I met the love of my life (sappy, sappy, sappy…but TRUE!) after breaking up with the other dude. He has ADHD too. We absolutely adore each other, and aren’t one bit annoyed with each others’ ADHD quirks. Half the time we don’t even notice each other’s ADHD quirks, the other half of the time we’re delighted with them.
I find it highly amusing to watch him wandering around doing some of the exact same funny things that I do to myself all the time, it’s so funny to see it from the outside! Ex: today he tore the house apart from top to bottom, looking for his W-2. He says “I just know that I put it somewhere allegedly safe, and I have no idea where that might be!”. Every year I lose my W-2’s, tear apart the house, and say exactly the same thing. We really need to stop putting things in safe places! I just gave him big hug 🙂
As Katy’s story illustrates, one person’s ADHD diagnosis and treatment can “level the playing field” in the relationship.
In other words,it allows the couple to more clearly assess compatibility beyond the obvious level of, for example, “I’m disorganized and he’s very disorganized.” Moreover, it ups the ante on the other partner “copping” to any dysfunctional behavior of his or her own instead of, as Katy points out, hiding behind a partner’s dysfunction.
When The “Partner Of” Does Have ADHD, Too
Using the term non-ADHD partners to describe the partners of adults with ADHD never made sense to me. For starters, what if they have ADHD, too? Happens all the time.
But what if they don’t yet know they have ADHD? Given the millions of adults with undiagnosed ADHD, of course it’s possible. Moreover, it figures that the partner with the most obvious or extreme ADHD symptoms will be diagnosed first while the other might come to it only years later. Or never.
Over the years of moderating support groups for partners of adults with ADHD, I’ve often wondered about certain members who over long periods of time continue to report no progress on the home front. They also tend to be the ones who keep repeating the same problems and asking me the same questions, never seeming to internalize the information and take action. Could they possibly have ADHD, along with their partners? (Side note: I also see this phenomenon among some parents of children with ADHD who don’t seem to notice they might have ADHD, too.)
Some eventually do figure it out. But, from what I’ve observed, it typically happens months or even years after a partner’s treatment starts to stabilize. When the dust finally begins to settle—when they’re not constantly being drawn into a partner’s ADHD-related crises and dramas—they (or their therapists) can more clearly perceive their own contributions to the problems in the relationship. Finally, they can start separating years of poor coping mechanisms (in reacting to a partner’s unrecognized ADHD symptoms) from their own lifelong challenges.
I receive many letters from readers of my book, Is It You, Me, or Adult A.D.D.? As you would expect, many are written by the partners of adults with ADHD. Surprisingly, though, most letters come from adults with ADHD.
What The Research Tells Us
The anecdotes from Katy are just that: anecdotes. They are not statistical probabilities; they are simply possibilities. And when it comes to the mental health of partners of adults with ADHD—newly partnered or in longstanding relationships—anything is possible. That hasn’t stopped the pundits, however, from issuing often-repeated stereotypes about the partners’ psychological makeup or personality, including
- They have ADHD, too
- They have low self-esteem
- They are “sadistic and controlling”
- They are boring “muggles “
Trouble is, such certainties are based purely on bias and conjecture even when issued by alleged experts, as they regrettably often are.
First, consider this: ADHD affects an estimated 10 to 30 million adults in the U.S., it is a syndrome with highly variable traits, and there’s much more to a person than ADHD symptoms. In short, we cannot make any one-size-fits-all pronouncements about adults with ADHD. How then can we possibly do that for their partners, past or current?
Second: We cannot assess the partners’ psychological characteristics without also considering the end result of living with a mate’s undiagnosed or untreated ADHD symptoms—sometimes for decades and sometimes while also raising children with ADHD. Sure, we can make anecdotal observations how the partners typically seem now, a few months or a few decades into these often high-stress relationships (and this, it seems, is what the alleged experts do). But what were they like before a few spins around the ADHD Roller Coaster? And what about the partners we don’t see in support groups?
Research is extremely limited on this topic, yet there are two small but important published studies from well-known researchers that shed some light. And there is the ADHD Partner Survey, which examined this topic from several angles. First the published research:
- The psychosocial functioning of children and spouses of adults with ADHD found that “overall, spouses of ADHD adults show no more lifetime and current psychiatric disorders than spouses of comparison adults, challenging the concept of selective mating. They do, however, report more psychological distress on the SCL-90-R and less marital satisfaction. “
- The marital and family functioning of adults with ADHD and their spouses – found that the spouses of adults with ADHD did not differ from the control group in terms of psychiatric health.
The ADHD Partner Survey asked respondents about the state of their mental health both before and during the relationship. The goal for this part of the survey was to differentiate between baseline mental health-conditions (prior to relationship) and the psychological impact of living with a partner’s unrecognized ADHD symptoms. The picture that emerges is of a diverse group who bring to these relationships very different backgrounds and mental states. No surprise there.
It seems the only accurate description we have for the partners of adults with ADHD is this: They live with (or used to live with) a partner who has ADHD. After that, anything is possible and no one-size-fits-all characterizations are useful.
Gina Pera is an internationally renowned author dedicated to exploring ADHD especially its impact on relationships. Follow her on Twitter at @GinaPera or on her website www.ginapera.com.